Lectures

(Dis)continuities in cancer care: An ethnographic approximation to practices of disease stratification

Background:

Disease stratification practices have long been used as a means to produce and make sense of  cancer, distinguishing ‘types’, tumour development stages, and even patients’ sociodemographic profiles. However, interest in stratification; that is, the process of dividing oncology populations into clinically meaningful subtypes, has been re-invigorated by two recent developments in medicine and healthcare. First, an increased awareness of …

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Restoring the balance: Living well with pain

Like dementia, persistent pain comes with irreparable losses: physical restrictions, strained relationships, financial problems, perished dreams and ambitions. Both conditions require ethnographers and care professionals to shift focus from cure to care, from treating illnesses to learning how to live with restrictions. The question thus emerges: how do we learn to live with such ‘diseases that do not go away’ …

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Gramps and the Gangster visit the memory clinic

“Are you free tomorrow?”

“Sure, what’s going on?”

“It’s a big day for Gramps! I’m taking him to the doctor. I guess someone from the ward office said he ought to be checked for dementia.”

I could tell Ken was trying to make a joke about this ‘big day,’ but as he started slowly walking past me, he leaned his …

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Thinking pain

Care worker Annika announces that she does not want to go to Mr Moran. “He always complains.” “I’ll go”, says her colleague Robin, and turning to me he says, “I don’t have the intern today so you can come along if you want to see for yourself how it goes”. We head off to assemble the materials for the morning …

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Taking part in and being part of giving birth: Enacting participation in a midwife-led birth situation

According to her midwife Jana, Mira’s was a textbook birth: it was quite fast, even for a second birth, and proceeded without any complications. In reflecting on her attendance at Mira’s birth, which I had witnessed the day before, Jana emphasised that her task during birth is only to observe: “Observing, keeping an objective view, and recognising what the situation …

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Burning down the house: When crisis becomes daily life in early-onset dementia

For my doctoral research, I interviewed family members living with a loved one with early-onset dementia, a diagnosis that one receives under the age of 65. Jans, not his real name, was the fourth person I interviewed in April 2015. Since he lived in a remote village in the east of the Netherlands, we met at a train station to …