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Thinking pain

Care worker Annika announces that she does not want to go to Mr Moran. “He always complains.” “I’ll go”, says her colleague Robin, and turning to me he says, “I don’t have the intern today so you can come along if you want to see for yourself how it goes”. We head off to assemble the materials for the morning …

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Taking part in and being part of giving birth: Enacting participation in a midwife-led birth situation

According to her midwife Jana, Mira’s was a textbook birth: it was quite fast, even for a second birth, and proceeded without any complications. In reflecting on her attendance at Mira’s birth, which I had witnessed the day before, Jana emphasised that her task during birth is only to observe: “Observing, keeping an objective view, and recognising what the situation …

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Refraction of participation

Refraction of participation

What does it mean to participate? What does participation do?[1]

The etymology of ‘participation’ traces from the Latin word participationem, which translates as ‘sharing, partaking, make partaker of’.[2] The word is composed of the Latin pars (a part, piece, division), and the stem capere (to take). To participate is thus to take part.

We …

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The House

The question of how Willem was coping, alone in the big house, had come to concern many of those surrounding him. Over the past couple of months, Willem had been tired, and was showing up at the drop-in centre less and less. His daughter had called on others to help him to prepare warm meals. He himself talked of his …

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The final station

The sun wakes her up. But Mrs Wijngaard keeps her eyes closed. She is 90 years old and sits quietly in her armchair in her apartment in the nursing home. And lets her thoughts wander. For three months she has been living here now, in an apartment with a living room, one bedroom, private bathroom and a kitchen corner. She …

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Burning down the house: When crisis becomes daily life in early-onset dementia

For my doctoral research, I interviewed family members living with a loved one with early-onset dementia, a diagnosis that one receives under the age of 65. Jans, not his real name, was the fourth person I interviewed in April 2015. Since he lived in a remote village in the east of the Netherlands, we met at a train station to …