Lectures

From Quality of Life to Disability Justice: Imagining a Post-Covid Future

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Like a CT-scan of the American body politic, the COVID-19 crisis has revealed deep fault-lines in our medical system, especially the inequities that stratify health care along lines of race, class, age and disability. In the midst of ongoing devastation, future visions of a more just world that might emerge from this situation include an alternative model advanced by disability …

Lectures

The structural silencing of disabled children and their parents: A reflection on who is absent in discussions about the toll of coronavirus

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Content warning: suicidal ideation

Last Wednesday was the day I learned to always carry a paperclip in my pocket. 

We were laying in the soft green grass watching puffy clouds in the sky when my eight-year-old son threatened to jump from my bedroom window. He described how breaking glass would slice his neck and then kill him when he landed, …

Lectures

Neurological, Structural, and Pandemic Emergencies: Elective Cochlear Implant Surgery during the COVID-19 Pandemic

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While conducting research in India during the summer of 2019 for my book on cochlear implantation, I kept on coming across an interesting object: a small cardboard office supply holder shaped like a yellow and black ambulance on which it is written on the side, top, and back in block capital letters: “HEARING LOSS IS AN EMERGENCY” and “ACT NOW” …

Lectures

A home for Sofia: Family, disability and housing in times of Zika epidemics

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A casa de Sofia: família, deficiência e moradia nos tempos da epidemia do Zika

Rumo à realização do sonho

Caía uma chuva fina. Acordei antes do sol nascer para colocar todo mundo de pé. Lavei a louça que estava na pia, passei um café com bastante açúcar. Enquanto isso, minha mãe, que também já havia …

Lectures

Feminism, disability, and reproductive autonomy: abortion in times of Zika in Brazil

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Feminismo, deficiência e autonomia reprodutiva: o aborto em tempos de Zika no Brasil

Introdução

Em novembro de 2015, após o anúncio de que o número de crianças nascidas com a condição clínica de microcefalia no nordeste do Brasil havia aumentado dramaticamente, o Ministério da Saúde do Brasil declarou emergência nacional em saúde pública (Diniz 2016a, …

Lectures

In the search of a school for Nancy: stories of disability, inclusion and care

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Procura-se uma escola para Nancy: histórias de deficiência, inclusão e cuidados.

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Com pouco mais de três anos, chegou a hora de Nancy – a filha mais nova de Monica – se matricular em um berçário, conhecer o ambiente escolar e fazer novos amigos. Monica estava ansiosa e queria ter certeza de que preparava o terreno para …