Features

Intimate connections and singular embodiments: disability in times of the Covid-19 pandemic

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In Brazil, most state governors and city mayors in Brazil have been following the World Health Organization (WHO) guidelines and, in defiance of federal government protocol, have adopted policies of social isolation and distancing. To stay home with our families, going out only when necessary is an effective policy for care and prevention aimed at the “general population.” Still, when …

Lectures

What the experience of Covid-19 tells us about disability, work, and accessibility

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The ‘new normality’ in the world of work:

Bernardo, one of the authors of this piece, has Larsen’s Syndrome, a rare genetic disease. Because of this, he has difficulty traveling long distances and needs accommodations. He says that on the first day of work on January 2020, in an effort to find the classroom where he would teach courses on …

Lectures

From Quality of Life to Disability Justice: Imagining a Post-Covid Future

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Like a CT-scan of the American body politic, the COVID-19 crisis has revealed deep fault-lines in our medical system, especially the inequities that stratify health care along lines of race, class, age and disability. In the midst of ongoing devastation, future visions of a more just world that might emerge from this situation include an alternative model advanced by disability …

Lectures

The structural silencing of disabled children and their parents: A reflection on who is absent in discussions about the toll of coronavirus

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Content warning: suicidal ideation

Last Wednesday was the day I learned to always carry a paperclip in my pocket. 

We were laying in the soft green grass watching puffy clouds in the sky when my eight-year-old son threatened to jump from my bedroom window. He described how breaking glass would slice his neck and then kill him when he landed, …

Lectures

Neurological, Structural, and Pandemic Emergencies: Elective Cochlear Implant Surgery during the COVID-19 Pandemic

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While conducting research in India during the summer of 2019 for my book on cochlear implantation, I kept on coming across an interesting object: a small cardboard office supply holder shaped like a yellow and black ambulance on which it is written on the side, top, and back in block capital letters: “HEARING LOSS IS AN EMERGENCY” and “ACT NOW” …

Lectures

A home for Sofia: Family, disability and housing in times of Zika epidemics

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For English click here.

A casa de Sofia: família, deficiência e moradia nos tempos da epidemia do Zika

Rumo à realização do sonho

Caía uma chuva fina. Acordei antes do sol nascer para colocar todo mundo de pé. Lavei a louça que estava na pia, passei um café com bastante açúcar. Enquanto isso, minha mãe, que também já havia …