The ‘truth’ about ALS: Reconciling bias, motives, and etiological gaps

This article is part of the series:

In February of 2019, I was giving a talk in New Haven, Connecticut. My paper was an overview of my research, titled “Is It a ‘White Disease’? ALS, Race, and Suffering in St. Louis, MO.” I closed with an ethnographic vignette from a key informant, Tyrell, whose brother had died from amyotrophic lateral sclerosis (ALS) three years prior, after being …