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Against Forgetting: Telling Stories After Zika

This article is part of the series:

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Contra o Esquecimento: Contando Histórias após o Zika

Dois anos atrás, em um aeroporto, enquanto esperava uma conexão, recebi uma mensagem de WhatsApp de uma mulher no Brasil que conheci através da minha pesquisa de campo e trabalho voluntário em Salvador, capital do estado da Bahia. Ela era uma das mães associadas a uma ONG …

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Changing Time

History and dementia are both concerned with time. Writing history is all about folding time, making sense of things that have become confused and confusing with the passage of time by bringing different points into contact. And dementia, as the reflections in this series show, suggest different ways of experiencing and enacting time. These variations in dealing with time …

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Thinking pain

Care worker Annika announces that she does not want to go to Mr Moran. “He always complains.” “I’ll go”, says her colleague Robin, and turning to me he says, “I don’t have the intern today so you can come along if you want to see for yourself how it goes”. We head off to assemble the materials for the morning …

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Peripheral participants: Thinking through distortion, displacement, nullification

Warm haze

As I spoke, people looked at me worriedly. The kindness in their eyes was mixed with curiosity and concern. Rather than answering me, they turned to each other to discuss something beyond my grasp. I had aphasia and my incoherent stream of words was puzzling to the people around me. I spoke, I thought, in perfect sentences but …

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The House

The question of how Willem was coping, alone in the big house, had come to concern many of those surrounding him. Over the past couple of months, Willem had been tired, and was showing up at the drop-in centre less and less. His daughter had called on others to help him to prepare warm meals. He himself talked of his …

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Burning down the house: When crisis becomes daily life in early-onset dementia

For my doctoral research, I interviewed family members living with a loved one with early-onset dementia, a diagnosis that one receives under the age of 65. Jans, not his real name, was the fourth person I interviewed in April 2015. Since he lived in a remote village in the east of the Netherlands, we met at a train station to …